This page outlines the work we are doing at the end of life population board to support people who are approaching end of life

End-of-life care is defined as care that:

“helps all those with advanced, progressive, and incurable illness to live as well as possible until they die. It enables the supportive and palliative care needs of both patient and family to be identified and met through the last phase of life and into bereavement. It includes the management of pain and other symptoms and provision of psychological, social, spiritual, and practical support”

(Department of Health, 2008).

It is our aspiration that Leeds is a great place to live out our final years, months, and weeks of life, to have great confidence in our care and comfort, and to have the assurance we will die with dignity and peace.

The End of Life Population Board brings together partners from across Leeds so that we can tailor better care and support for individuals and their carers, design more joined-up and sustainable end-of-life care services and make better use of public resources.

Outcomes for the end-of-life population board

The ambition of our end-of-life work in Leeds is that we will increase the proportion of people who experience a ‘good death’. This means that people approaching the end of their life will:

  • Be recognised and supported on time.
  • Live and die well according to what matters to them.
  • Receive high-quality, well-coordinated care in the right place, at the right time, and with the right people.
  • Along with their carers, be able to talk about death with those close to them and those in their communities and be confident that their loved ones are supported during and after their care.

These are our identified outcomes. By setting these clear goals, that are focused on how services impact the people they serve, the board is able to better track whether we’re really doing the right thing for the people using these services.


Insight review

We have worked with our partners to review the feedback (insight) we already have about people’s experience of end-of-life services. This will help us understand what we already know. You can read the report below:

Download the end of life care insight report (Microsoft Word version)

End of life care – Insight report (453KB)

In order to view PDF documents you will need Adobe PDF Reader


Public involvement workshop

We held a public involvement workshop to check the findings of our insight report, review our identified outcomes (as above), and discuss our approach to public involvement on the board.

You can watch a recording of the workshop by clicking the button below (the recording includes subtitles).

Watch the public involvement workshop for end-of-life (YouTube)


Download the notes from the end-of-life public involvement workshop (Microsoft Word version)

Notes – End-of-life public involvement workshop (225KB)

In order to view PDF documents you will need Adobe PDF Reader


You can download the slides from the workshop below. Please note that these might not be fully accessible and we will aim to update these as soon as possible

Download the end-of-life public involvement workshop slides (PowerPoint)

End-of-life – public involvement workshop slides (1MB)

In order to view PDF documents you will need Adobe PDF Reader


People’s experience of end-of-life services

We always want to hear about your experiences of using services, it helps us know what’s working, and where things could be improved.

There are a number of ways you can tell us about your experiences:

‘How does it feel for me?’ project by Healthwatch Leeds

Get involved in sharing your experiences by video or written testimony. Your feedback will be shared with senior decision-makers in Leeds. See people’s experiences and find out more by visiting:  https://healthwatchleeds.co.uk/our-work/how-does-it-feel-for-me/

Share your story on Care Opinion

Care Opinion is an independent place where you can share your experience of health or care services, and help make them better for everyone. You can share your own story on Care Opinion. Say what was good and what could have been better.

Find out more and tell your story

© Copyright 2024 Leeds Health and Care Partnership | Lovingly crafted by Mixd