The Networked Data Lab (NDL)

Brief description of project

The NDL supports partners to use their data to improve health and care in the UK, and reduce widening health and care inequalities. It does this by identifying and understanding areas of care (topics), such as the needs of unpaid carers.

Working in this way enables us to better understand the health of our population, and how they use services. Bringing data together enables us to plan and pay for health and care for different populations.

For example, ‘dataset A’ might tell us lots of information about bowel cancer, ‘dataset B’ gives us information about how cancer patients want to access services, and ‘dataset C’ tells us about how cancer affects certain people from diverse communities. By combining this data, we have a better understanding of bowel cancer services for this community. We can use this insight to design and pay for better cancer services for this specific population.

Who will we speak to?

We will also talk to people with lived experience and professionals who have an interest in data and the topics we are focusing on.

What and how will we ask?

We will ask people with lived experience to tell us what matters to them. We will support people with lived experience to work with data professionals to improve the way we use and share health information. This will be done using existing information (insight) about people’s experience, and group work.

What will we do?

We will use feedback we receive from people with lived experience and healthcare professionals to better understand our population and develop health and care services.

How can you help?

The topic we are currently working on is ‘intermediate care’ (HomeFirst). These are services that provide support over a short time to help you recover from illness and injury and increase your independence. If you would like to share your experience of intermediate care, please contact Helen Butters on [email protected] or call 0113 221 7777 (reception).

Get in touch

To find out more about the projects, please visit the Health Foundation website page

If you have any questions about this project please contact Helen Butters at [email protected] or call 0113 221 7777 (reception).

Resources:

NDL Topics:

You can find out more about the NDL work by following the links below:

• Topic One: Impact of COVID-19 on shielded patients
• Topic Two: Children and young people’s access to mental health services
• Topic Three: Inequality and accessibility to services for unpaid carers

Communication and Engagement Plan

Communications and Engagement Plan – Microsoft Word version (21KB)

PPIE Framework

Patient and Public Involvement and Engagement (PPIE) Framework – Microsoft Word Version (21KB)

October 2021 – Press release

October 2021 – Press release – Microsoft Word version (85KB)