The University of Leeds is working with the people who provide health and care services across the city of Leeds. Together we would like to understand better the experience of people in Leeds who have a number of long-term illnesses (such as diabetes, chronic obstructive pulmonary disease (COPD) and hypertension).
We are hoping that through this work we can find new ways to provide health and care services that help make the lives of people living with these illnesses better.
We will do this by looking at health and care data to learn about how people living with long-term illnesses currently use health and care services and identify areas where improvement may be needed. We will also hold workshops to hear from patients who are living with long term illnesses, health and care staff and researchers to understand peoples experiences and test some ideas for new ways to provide health and care services.
Leeds will also work with other areas in the UK to share and compare what they find out.
The group doing this work is called the ‘Systems Engineering Innovations Hub for Multiple Long-Term Conditions (SEISMIC)’, and this work is funded by a research grant from the National Institute for Health and Care Research (NIHR) and the Engineering and Physical Sciences Research Council (EPSRC).
To support this activity, the NHS will share a limited set of coded information from your medical record with the University of Leeds. This will only be done where the law allows, plus the NHS will apply strict controls around use of this data and will only share data that has been anonymised beforehand. You have the right to object to your information being used or shared for this purpose and you should speak to your practice if you wish to object.
For more information on how we use your data, view our privacy notice here.